Thursday, June 29, 2017

Our Easter Miracle

Wow...It has taken me a couple of months to post this. I didn't want to have to relive the month of April. I also don't want to bring people down by depressing posts. But it is what it is!  I have to press on with this blog. My purpose is to update family and friends on Frankie's progress and to help other parents/caregivers that face similar challenges.

After my last post, things seemed to be looking up until Frankie's fever and rash persisted. They were relentless. They would not go away. I took Frankie to the ER at a local hospital once again because she seemed dehydrated and her fever wouldn't go down, even with alternating Advil & Tylenol. After an IV of fluids and a test for strep, they let us go and said it was probably a virus causing the fever.

A few days later, I took Frankie to Children's hospital in Plano because her fever was still high and she was dehydrated, once again. I'm so glad I took her in again because by the time they had a room ready, she had a temperature of 107! Forget transferring her to the ICU...they wanted to transport her to Children's in downtown Dallas because they had a team of infectious disease doctors. They knew our history and that Frankie has had this mysterious fever and rash now for weeks. ID doctors are supposed to be some of the smartest docs on the planet so I was thrilled that we would possibly be closer to getting some answers and treatment!  As we were loading her up in the ambulance (I was sitting shotgun next to the driver,) one of the guys in the back that was tending to Frankie said something to the driver via radio. The driver got out of the ambulance and I quickly opened my door and ran to the back to see what was going on. They said Frankie couldn't be transported to the hospital...her blood pressure was dangerously low. I think at this point I couldn't feel my legs and everything around me was blurry. Was I about to have a panic attack? There was no time for that. They rushed Frankie back inside the hospital into their ICU area. I had already called Mark and he was on his way from work to Children's downtown. I remembered to call him back to tell him we were staying at the Plano hospital and to NOT head downtown. Deep breaths. Slow breathing. I managed to stay composed.



The next day, Frankie was finally able to be transported downtown. Once we arrived, we were put in this tiny room and every time a nurse walked in, they had to put on this yellow gown and mask. We secretly called them minions because we needed to laugh at something!  Every person that entered the room had to wear those gowns/masks. We soon learned that Frankie was in quarantine because nobody knew what was going on and she could possibly be contagious.

That night, Mark slept on the floor and I felt so bad. I had a couch to sleep on. We had asked for a bigger room or even an extra recliner but they said they didn't have any. Sleeping comfortably was truly the least of our worries tho...we were hoping that someone could tell us what the HECK was going on with our daughter!! What does she have? A virus? Pardon the medical terminology but Frankie's neutrophils were at ZERO. Yes, ZERO. Her platelet count was extremely high and lymphocytes were WAY out of whack. Could all of this be a side affect of the tryleptol--the anti seizure med that we added a month ago? We had taken her off of this medication not knowing if it was toxic. Kawasaki disease was still on the table too so the doctors ordered an ECHO of Frankie's heart to rule this out after she was stabilized.

I have to say the sonographer was SO very kind. It was nice that he came to our room, well..maybe he had to given she was quarantined. When the procedure was all over, he let Frankie use his instrument to pretend as if she was giving herself an echo. She really enjoyed that. He even said I could videotape it, which I did. Wait, can you see his minion cape in the photo? ;)





Bloodwork was done around the clock and we were told an oncologist and rheumatologist were going to meet with us the following morning if Frankie's numbers didn't improve. A spinal tap would have to be ordered. I gulped. I googled like crazy because I had the lab work numbers in front of me. I wanted to cry. Well, I did cry. I noticed Frankie's liver count was WAY off in addition to everything else....Could she have leukemia because of the crazy platelet numbers? Is this why the oncologist is coming to talk to us? That night was one of the longest nights ever. I got on my knees and prayed. God, NO! Don't let her have a terminal illness. Please heal her! She's a fighter. She will be fine.

Did I mention that next morning would be Easter morning? Meanwhile, we were trying to play games with her, even allowing her to put on my makeup!! I kept trying to keep her mind off of the IV that was in her arm for days AND that we were confined to one room. I honestly think I was more bugged by this than her. How selfish!?






There was a really nice guy that kept visiting us periodically. He's an infectious disease resident. He, too was a minion! They all had to put on those yellow gowns and masks.  I really liked him because he made me laugh (would throw in a joke or two,) and he would mention his thoughts on a possible diagnosis. He threw out things like...maybe she has celiac disease. Maybe this IS Kawasaki disease after all. I felt like I could talk to him like a friend so I begged him to walk down the hall and go check to see if the lab work from that early morning was in. Pa-LEASE!? Can you??

Within an hour, an oncologist came to our room. I really didn't want to see him. I was hoping for an ID doctor to come in and give us good results. I glanced at the oncologist with a fake grin, he looked at me, then at Mark and smiled. He introduced himself and said that Frankie's numbers significantly improved. No spinal tap was needed. He was convinced that we were dealing with some sort of virus, rather than a form of cancer. Can I just tell you how RELIEVED I was? Mark had this look on his face I can't describe. It was one of the happiest days of our lives. It was our Easter miracle.



We were definitely not out of the woods though. The rheumatologist came to our room later that morning to talk to us. She examined Frankie thoroughly. They had to rule out a certain types of autoimmune diseases that could strike with early symptoms such as the ones Frankie was presenting. Thank goodness, they were ruled out for now.

As the days progressed, Frankie continued to improve. Her fever subsided and she slowly came back to her spicy self. On April 18th, I got the best birthday present ever. We were able to be discharged! We happily left the hospital, even though we were extremely grateful for the team who possibly saved Frankie's life. We later learned she was septic.

As we drove off from the hospital, I quickly rolled down the windows of the car. It was our first time to breathe in fresh air in 6 days. It was amazing! I wanted to sing and scream out of happiness. I wish I knew what Frankie was thinking but she was smiling. And giggling. That's all that mattered.

When we drove up to our driveway, one of my besties Amy was placing something on our porch. BUSTED! Our front door was adorned with flowers and gifts from family, neighbors and friends...none that were needed, but much appreciated!Best part of all? We were HOME and healthy.






Because of this crazy medical mystery, I asked our neurologist to order a genetic test for the MTHFR mutation. Actually, my sister, Carissa did. She was able to go with me to our follow up with appointment with Dr. Jan. We go over the test results tomorrow. I have read and studied many of the results that are in and they are fascinating. I will definitely write about them during my next post.

Aside from all this medical stuff, we were able to watch my niece graduate from high school and spend a week on the beaches in Florida. This trip was amazing and much needed! Frankie has always been a beach baby, thank goodness. We took in the fresh air and rarely thought about our real world. It was our little paradise.






Rewinding a bit...A LOT has happened at school since my last post and with our ARD meetings. These are meetings that teachers, specialists and parents/caregivers have that go over academic goals for children that qualify for special education. I don't want to use this platform to get into details, but we are hoping for a brighter year in the FALL, and for more resources for Frankie.I will definitely post more later.

Not surprising to us, Frankie qualified for Summer school. Her last day was last week. Let our Summer begin!!! It was a three week program that focused on literacy and reading. Frankie loved her teacher, but he left after the second week! They had a substitute the last week. The most rewarding thing was that she met Kaylee...a neighbor and now best friend that was in her class. I know these two are going to be tight and hoping they are in the same 1st grade class in the Fall.





We continue to have fun at our neighborhood splash pad, pool and park. We will be leaving to McAllen/beach in a week to sneak in one last vacay in before school starts on August 16th. Seize the day, right?! This Summer is already flying by.

(Thank you, Sara Van Buren for this photo of Frankie!)



I have to leave with this.

Yesterday morning, Frankie said this while she was sitting down eating breakfast. Keep in mind she still struggles with speech. Sometimes, she has a hard time finding the words she wants to say.This can be frustrating for her. So here's the dialogue I wrote down and can't stop thinking about.

Frankie: "Mommy. Last night I went to the ceiling." She paused. "To see Jesus."
Me: "What? Really? Were you flying?
Frankie: "Yes. And I didn't come back."
Me: "What? Why? Why didn't you come back?"
<silence>

As soon as she said this I wrote it down. I was shaking. I called my sister, Carissa and had her talk to Frankie. I was hoping she would possibly open up and tell her more. She kept going on with her story...I'm guessing it was a dream she had or a visitation from HIM.




Saturday, March 4, 2017

SOAR!

Today was a day that Mark and Frankie were going to spend the day together. I planned to meet a dear friend for her birthday celebration in Fort Worth. I had also planned to attend a get together tonight. Well, I was bitterly reminded how much epilepsy bites and can sever plans abruptly. It's ok though. What happened to us last night makes us put everything in perspective, once again. 

This past month has been eventful and fun! We had some close friends from Virginia stay with us for a long weekend. They had never been to Texas! Frankie loved showing them the ropes, being the lead during our shopping venture in good ol' downtown Grapevine. Please go there, if you live nearby and haven't been!








Valentine's Day is a hallmark holiday and we happen to love it! Do I have a frog in my pocket for saying 'we?' Maybe. I know Frankie and I love it. =) Frankie had a Valentine's party at school so I decided to volunteer to help with that. Wow. I have even MORE respect for teachers, if that's even possible. Lots of kids, lots of noise and lots of candy surrounded the room. Oh, and lots of love!







In late January, Frankie had a follow up visit with her neurologist Dr. Jan. She always does a thorough exam. She checks Frankie's range of motion in her legs and arms. She videotapes her gait and has her walk and run with and without shoes. She also records her talking. I absolutely love this because it helps us measure progress! Things went SO very well. Frankie's physical therapist, Mallory happened to be at Dr. Jan's office (she works there one day a week) when we were there. They both agreed that we should try Botox. No not on my crow's feet, silly!... on Frankie's ankle area and lower part of her right leg! This should help lessen the spasticity and allow her to have more range of motion in her right foot and leg. This way, she is lest likely to walk on her toes and hopefully be able to put her heal down first while walking. We will be scheduling this appointment soon and not looking forward to her having to endure all the pokes but we are more confident it's for the best after being on the fence about it for two plus years.

Throughout the neuro appointment, Frankie was very communicative and cooperative. In the past, she would clam up and not be very talkative. We realized how much weight Frankie had gained and Dr. Jan said this was the "best appointment to date." Frankie is showing a lot of progress in terms of health, motor skills, fine motor skills and speech. YAY!! Reducing gluten intake and "eating right for our blood type" have truly helped.







Let's see, we visited the dentist and Frankie remains, cavity free. She was so giggly during the exam. It's finally getting easier and pleasant. A few days after the appointment, she lost her 5th tooth. Mark had to tug on it a bit but in the end, it fell out on it's own and...was swallowed down the chute. No worries. I made a really cool fake one out of toilet paper and water....I was pretty impressed by it myself. If she knew her tooth was forever lost she would be devastated. After all, the tooth fairy takes her teeth away at night so that she can make her a pretty necklace out of them when she's older. ;)  Thanks Mimi, for instilling that in her. :)





Weekly private therapy continues, however I was just informed that we may not be able to take Frankie out of school early to take her to therapy anymore. Texas law. Huh? You can take an autistic child out early for therapy, but not one with cerebral palsy. You can also take a child out early for dance, equestrian lessons, etc...because it counts towards a PE credit but...you can't take a child out for physical, occupational and speech therapy. Seems a little strange to me. I literally need to read a law book to accept this.

In physical therapy, Mallory gets Frankie on the treadmill and continues to work on strengthening Frankie's glutes. Backwards walking is a great exercise we do there and at home that can help with this. Mallory & Frankie also do fun stuff like riding on a scooter!  In Speech, Mr. Tim says Frankie is so much more talkative and verbal. Her sentence structure & articulation have improved significantly. Ms. Jennifer, Frankie's occupational therapist continues to try to get her to do bimanual activities. They also do a lot of fine motor activities. Recently, she was having Frankie put some puzzle pieces together while I watched. We were both really concerned because Frankie would try to place a puzzle piece about an inch away from where it belonged. Just another reason why we need to find a vision specialist.Thankfully, I recently found an optomotrist in Prosper who does vision therapy and has worked with kids like Frankie. We have our first exam with her this Monday. We are hoping that glasses and/or vision therapy can improve Frankie's vision and hopefully help her with handwriting & reading. Prism glasses may be an option if she does indeed have field cuts, which is what we suspect. Regardless of what the outcome of the visit is, Frankie's care team & I have all agreed that there is definitely something going on that's not right. No eye doctor has been able to pinpoint the problem as of yet. We have been through many.






As far as school goes, Frankie recently participated in a fun run to raise money for classroom resources, bike racks and playground equipment. It was a chilly morning but Frankie managed to run 22 laps! I was there taking snaps as usual, watching her braids fly in the air lap after lap. She never got tired. Her teacher, Mrs. Jackson whom she adores was by her side the whole time. Everyone had a great time.






School can be fun, but I have been more and more concerned with Frankie's lack of progress. What subjects? Well, really all of them. Math, social studies, science and reading. I look at her progress reports and get that ugly feeling in the gut every time. After consulting with other moms that go through similar challenges with their children, I was encouraged to speak to our special education director for the ISD to see what more we can do. Time is very precious and I can't sit back and do nothing. Frankie's care team agrees that she needs more.

I was able to meet with the director last week. I walked in with a law book, IEP book and a binder full of notes. I had done some research in terms of special ed laws & regulations in Texas since it's significantly different here than it is in Virginia.

The meeting went well and much of the information will be included in our next IEP meeting in a few weeks. One hopeful outcome is that Frankie will soon be learning the keyboard at school too, YAY! That is, if the recent evaluation proves the need. I'm sure it will. Keyboarding  & assistive technology are things I requested at the beginning of the school year but it's taken a while to get the ball rolling.

So...last night was a little crazy. Mark, Frankie and I went out to an early dinner. We all went to bed early, around 9?? even though it was Friday night. Ahem, this is no surprise to those that know us well. Around 10:00pm, Mark and I both sat up in bed at the same time because we heard a strange noise coming from the monitor on my nightstand that's connected to a camera in Frankie's bedroom. It sounded like snoring. Mark jumped out of bed faster than I could. When I walked out of the bedroom to run upstairs, he was already running downstairs to get the Diastat. My heart was racing and I knew Frankie was having a seizure. I quickly grabbed my phone and ran upstairs. Frankie was seizing and having problems breathing through her nose. She was a little congested so Mark grabbed the bulb aspirator to clear up the airways in her nose. (You should never open their mouths during a seizure!) Mark administered the Diastat and I called 9-11. I called paramedics because I was more scared this time. We had the breathing issue and we didn't know how long she had been seizing before we heard the noise. Thankfully, the seizure stopped 2 minutes after the syringe was administered.Shortly after, an ambulance and fire truck show up and about 8 men were squeezed into Frankie's bedroom. They checked her vitals and at that point, she was postictal and out of it. They asked if we wanted her transported to the hospital and we agreed not to. Her vitals were good and we knew she would be most comfortable sleeping the med off at home.

Mark slept with Frankie last night and I'm sure we both didn't really sleep. This morning, I got sweet texts from neighbors that had seen lights & paramedics at our home wondering what was going on. I'm so grateful to live in this community where friends look after you and truly care. I feel secure knowing some of my close friends are just steps away from our home.

We had to wait until 8:15 this AM to call the pediatrician's office to find out a possible seizure-trigger. 9 out of 10 times it's triggered by illness. Our appointment was scheduled later this morning and strep was negative, ears looked good and everything seemed fine. I don't know if I was relieved or not. I wanted a stinkin' culprit! I emailed Dr. Jan to see when we can get in to see her. I'm 95% she is going to add a seizure med to our lovely arsenal of drugs since Frankie is maxed out on her current one.






We have to remain optimistic that one of these days, these seizures will never come back. They are ugly and I want them GONE. SHOO! I'm happy knowing that this is Lent and that crazy-awesome, miraculous things happen during this season. They happen all the time! I took this photo above a few weeks ago and love it so much I wanted to share. The trust our little girl has in us is endless! The impulse to learn on her part is there and we will continue to do everything we can to push her to fly and soar. These seizures, well they are just that. Seizures. Small road blocks that we won't allow consume us.

"One can never consent to creep when one feels an impulse to soar." Helen Keller

Monday, January 16, 2017

California Dreamin'

WOW! It has been almost 5 months since my last post. One of the reasons for this is because we have had A LOT going on in regards to Frankie. Every time I wanted to post here, I hesitated because there was so much to say and I didn't want to re-live some of the things that we were going through. Well, I can't delay any further.I love posting here because it's therapeutic, it updates friends/family on Frankie's progress and it may help others that are going through a similar journey.

So, Summer ended and Frankie started kindergarten. Even though she attended preschool the past 4 years, this new kinder environment is very different in that her class is much larger and she doesn't get the attention she was getting before. We expected this, but didn't think it would be this tough. Frankie would cry every night and every morning about not wanting to go to school. She would cry about not wanting to eat in the cafeteria, cry about the noise there, cry at the thought of recess,...the list goes on. We struggled a lot with trying to calm her down at home. I continued to contemplate. Is she at the right school? She has to share a classroom (more like an open room) with 1st graders. How is she able to pay attention to her teacher? The student teacher ratio is 1 teacher for 24 students. Does she belong in a mainstream classroom? Should I consider homeschooling? I've been trying to figure out our options and even hired our Neuropsychologist to attend our last ARD meeting as an advocate. 





Thankfully, the at-home crying about not wanting to go to school is getting better. I feel like we have a great team that is trying to help us determine ways we can create an environment in which she can learn at school at her fullest potential. One thing that hasn't helped matters is that Frankie was getting sick frequently so she has missed several days of school. 

Let's see...strep a few times, double ear infection, upper respiratory infection.....the list goes on. I'm guessing being sick is not abnormal when school starts;but these bugs she was getting were non stop and relentless. Not only did we miss out on school days, we missed out on a lot of social and family functions. 

On a brighter side, Frankie recently got 2 As on her report card....in PE and Music. ha! I remain very grateful. I'm grateful that she LOVES music & PE and that she did ok in reading. I say OK but that's compared to her peers. She loves her teacher, is willing to learn and I am determined to make sure she has the resources to do so.






A week after school started, Frankie had a princess birthday party. The big 6!! She was surprised to see Princess Ana show up at our front door and had a blast with all her sweet friends. This was definitely a great buffer in regards to brighting up her mood during the first tough weeks at school! 









In terms of health, when Frankie becomes ill she is more susceptible to having seizures. These past few months, we have found ourselves dealing with a few ugly Esses (my made-up word for seizures.) Not big ones, but small ones. We've also had several pediatrician & ER visits over the last few months. Because of all this, our neurologist encouraged us to get a follow up MRI of the brain and an EEG. She ordered the MRI to make sure the porencaphlic cyst in Frankie's brain has stayed the same, since our last few visits with her didn't go very well. Frankie hadn't gained weight, not even an ounce in over a year and she didn't seem to be progressing at school. And even more, she wasn't cooperative during our follow up screening tests so we knew we had to follow through with getting this done.  
Dr. Jan ordered the EEG because of the recent seizure activity. EEGS help detect the type of electrical activity in the brain and it's location. This would help determine whether we need to add another seizure medication. Do I want this? NO....new meds=new side affects and some can be ugly. BUT, if  we need to add another med, we NEED to. We'll deal with it.

We didn't walk out of Dr. Jan's office with just those 2 scripts! She also recommended a nutritionist because she was very concerned about no weight gain and we were given two more referrals for opthamologists since we suspect Frankie may have visual field cuts.

My first phone call was to a nutritionist, Suzanne Barker. Our first meeting with Suzanne was at Market Street...a fantastic store close to our home. It's kind of like a Whole Foods in that they have a wide array of vitamins, organic and gluten free foods. After our first meeting there and taking TONS of notes, I was about to drive off and I totally lost it. I had this immense feeling of guilt! HUGE! I learned SO very much in those 2 hours my head was literally throbbing. How could I have been feeding Frankie the things I was giving her? Why didn't I insist in seeing a nutritionist sooner? 


The day after I met Suzanne I quickly went to Sprouts and Whole Foods (spent a fortune) and bought supplements and gluten free items that I was convinced would help us. Since our first meeting we have decreased our gluten intake significantly. We are also "eating right for our blood type." I read this book YEARS ago. I continue to be a believer in that there are foods that agree with you and foods that don't, depending on your blood type. Frankie hasn't had chicken in 3 months, just to name one food we've eliminated. Happy to say that after our first month, Frankie gained 3 solid pounds!!And...her reflux symptoms were almost gone. AMAZING!!


So that was the easy appointment. On November 10th, we had our EEG at Children's hospital in Dallas and they asked us to arrive there sleep deprived. Sleep deprivation is another trigger for seizures so we know they wanted to see some action when placing all the electrodes on her head. They also wanted her to fall asleep because they can get a better picture of seizure activity when the mind is at rest. 


Frankie was a champ during the procedure. I was able to lay right next to her when her head was wrapped and electrodes were placed on her scalp. She kept asking me why we were there. I told her that Dr. Jan wanted to see a movie of her brain. She felt relieved in knowing there was a reason we were there, even though I don't think she fully understood the circumstances. 

During the procedure Frankie had to blow in this pinwheel for five seconds every 15 seconds to deprive her brain of oxygen. This was HARD TO WATCH. Thankfully, she was so compliant! I almost wanted to nudge her and say, "stop doing it!" To see this being forced was no fun, but I knew it was for her own good. They also kept flashing lights over her eyes since this is another trigger for seizures. We then tried to fall asleep (this at 10am) but couldn't....we got pretty close right before the time for the procedure lapsed. At that point, we were both thankful it was over and hoped they got ample info to make the EEG successful.








The MRI was done the following week on Nov 17th at Children's and it was a bit more nerve-racking. At least for me. I hate having to put Frankie under anesthesia. Mark, Frankie and I sat in the prep room at the hospital before the anesthesia was administered and she kept asking why she was there. She cried and I did too...but I kept turning around because I didn't want her to see me with tears. I suppose I was crying not because this is such a serious procedure, because it's not. I was sitting there thinking about the million questions she will have in the future, wondering what the results would be and how many other times she may have to endure this.

After what seemed like an hour of waiting, they told us they would only allow one person in with her right before she went under. I was full of tears so I asked Mark to go in with her.  This was a rare occasion! I felt mentally weak. I couldn't be strong for my own daughter! I feel like I failed her for not being the one to walk in with her but was SO thankful Mark was there, strong as can be.I guess some men ARE made of steel.







After a a week, the MRI & EEG results were back. MRI showed NO change YAY!! I was hoping that the cyst would miraculously be gone or that there would be no change. THANK you baby Jesus for this! The EEG results showed spiking during the procedure but no real seizure activity. This is good. Really, really good! Seizure med & dosage stay the same, at least for now.


After these procedures & a HUGE sigh of relief, we had our Winter Break. Christmas was here and we were so thankful to spend it with family. One of our favorite outlets is spending time at my family's ranch. Mark, Frankie and I spent a few days alone there and it was just what we needed. I'm thrilled that she LOVES it there as much as we do AND that she doesn't mind opening up the gates when we drive through different pastures. (I never liked that.)










As far as therapy goes, Frankie has joined a social group program with our Neuropsychologist, Dr. Beadle who we adore!  Even though we know Frankie is very social and plays well with others, we felt a program with Dr. Beadle would allow her more time to get to know Frankie. During this 5 week program, Frankie will explore a variety of social thinking topics such as group cooperation, following rules of conversation, regulating behaviors and emotions, and thinking about how others think. She is loving these sessions every Monday after school. Here they are below pretending like they are passengers on an airplane! 








Our private physical therapy, occupational therapy and speech therapy continue weekly at Our Children's House. Frankie loves all of her therapists and looks forward to going every time! In OT, we continue to work on strengthening her right hand.  She is trying to keep it on a grip for an extended period, like a chain on a swing. We are also working on bimanual activities and fine motor skills. Frankie's PT continues to try to strengthen her legs.In the photo below,  she is trying to stretch her calf muscles out and puts her on a wedge while playing ball. We continue to work on her gait since she tends to toe walk on the right foot. This is because of the spasticity on the right side. Thankfully, she's wearing her fancy noodle brace again in addition to her orthotics. This brace helps to decrease leg extension and should help her drop her toes when walking. "Heel toe, Frankie! Heel, toe!" That's what we continue to tell her. We are still waiting for the day that she will run. I guarantee  you though, she'll break those braces and haul tail like Forest Gump did if she needs to!!












Over all, we continue to ride the wave! I am so grateful for a fantastic team of doctors, teachers, therapists, family and friends in our village. Frankie is tolerating school a little bit better now. She made a great friend in her class, Olivia who is so precious! I can't get over how chatty & giggly they are when they're together. They "get" each other and I couldn't be more thankful for that.







I leave with this. This past Saturday, Frankie's big sis, Abigail visited us on her way to California. She drove many miles out of her way to see us before she arrives there to pursue an acting career. This, after graduating from college early as a Theatre Performance major. Abigail has cerebral palsy as well and has overcome so much. She is truly an inspiration to us and countless others. Thank you, Abigail for reminding us to always dream BIG. Even when we have setbacks.We send you off with love & faith in knowing you are going to ROCK it in Cali! Don't forget us little people!!! Your California dreamin' has come true! 










Last quote by rikki rogers

Frankie for Mayor!!

Since I haven't posted anything here in a LONG time, I feel the need to catch up on time that's lapsed--But I won't do it. I wil...